I'm Dying to Tell You
Self-Improvement
About
Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage others. To connect more. I'm happy you're here!
Episodes
- Erin Taylor and Her Mom Lily on Living Fully with ALS
Send us Fan Mail Meet the inspiring duo behind the @unsteadyandready Instagram account, sharing life with ALS. Here, I sit down with Erin Taylor, diagnosed with ALS at 23, to hear what it’s like to build a life in your twenties while your…
- Sam Cunningham: Trusting Your Body, Finding Your Voice, Facing ALS at 35
Send us Fan Mail For six years, Sam Cunningham felt the subtle but persistent signs that something in his body wasn’t right—leg heaviness, twitching, and strength loss that didn’t add up. As an athlete, he knew his body, but getting answer…
- The Sisterhood She Built: A Tribute to Leah Stavenhagen
Send us Fan Mail This episode is tender. In 2021, I interviewed a 28-year-old woman named Leah Stavenhagen. She had been diagnosed with ALS at 26. I remember thinking how young she was. How unfair it felt. But Leah didn’t shrink after her…
- Eric Paslay on “Come Into Our World,” a Song for ALS Awareness
Send us Fan Mail Grammy-nominated, platinum-selling singer-songwriter Eric Paslay joins me to talk about about the night he drew my song idea out of a hat. Eric brought his unique songwriting experience, "Song In A Hat" to Hop On A Cure's…
- Salym Liufau: Finding New Ways to Live with ALS for Her Four Children
Send us Fan Mail In this deeply moving episode, I sit down with Salym Liufau , a 33-year-old mother of four living with ALS, whose grace and honesty have touched thousands online. Salym opens up about adapting to a body that’s changing whi…
- Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -2/2
Send us Fan Mail In this second part of my chat with 33-year-old widow Melanie Lang, we talk about her & her husband Tyler’s biggest miracle, their daughter. Tyler only spent 6 weeks with his precious baby girl before he died of ALS at a y…
- Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -1/2
Send us Fan Mail I catch up with 33-year-old widow Melanie Lang to share how she and her husband Tyler faced ALS with relentless honesty, deep faith, and a simple motto that became their North Star: Don’t Waste A Day! If you’re navigating…
- Veterans, ALS and the Will to Fight!
Send us Fan Mail This Veterans Day episode brings together three service members living with ALS—Liz Fassler (Army), Ron Faretra (Air Force), and John Hudacek (Army)—to share how the discipline, teamwork, and purpose they learned in unifor…
- Happy Hour with Her ALS Story and "Hop" of Zac Brown Band
Send us Fan Mail In this Happy Hour Chat, I talk with Tina Cascio, Mira Hudson and Kelly McGinn, all young women who share their journey living with ALS after being diagnosed in their 20's and 30's. John Driskell Hopkins of Zac Brown Band…
- Supermilk's Jake Popyura: Navigating ALS with Humor & Music
Send us Fan Mail This episode follows the powerful and unexpectedly uplifting story of Jake Popyura , a musician and multi-instrumentalist in the indie rock band Supermilk , who was diagnosed with ALS at just 38. Rather than despair, Jake…
- Life After ALS: A Journey of Healing and Hope
Send us Fan Mail The emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill, Jenny, and Deb—four remarkable women who lost husbands and a sister to ALS—share their pat…
- Love, Legacy & Lou Gehrig Day: A Team Effort Against ALS
Send us Fan Mail In this heartfelt episode, we meet the individuals behind Always Lifting Spirits , Chair Force 1 Foundation , Operation Ramp It Up , Que4Care and the Cincinnati Reds — a community who turned their ALS grief into life-chang…
- Elin Adcock - Her Journey Facing ALS and FTD Together
Send us Fan Mail Here, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s now leading the charge to support families facing the same fight. When Elin's husband, Larry…
- Questions About ALS? There's an App for That: Roon!
Send us Fan Mail When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbreaking solution born from one son's love for his father. Vikram Bhaskaran takes us through t…
- Carrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & Action
Send us Fan Mail What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy Uhrlaub , who discovered she is a carrier of the C9orf72 gene—the most c…
- I AM ALS Turns 6: Community Teams Inspiring Change
Send us Fan Mail Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six years of I AM ALS, an organization created for patients, by patients. Why is this so importa…
- Fashion, HOPE, ALS Reversals: All with Dr. Richard Bedlack
Send us Fan Mail Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manue…
- Facing ALS with Resilience: Johnny Rodriguez's Inspiring Journey
Send us Fan Mail Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny’s story is one of i…
- "Clayton Rakes" - Two Siblings’ Mission to Honor Their Dad and Fight ALS
Send us Fan Mail What if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from Hudson, Ohio, are doing just that with their initiative, Clayton Rakes. Their story begin…
- Animated Film, LUKi & the Lights: Helping Children Understand ALS/MND
Send us Fan Mail "LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-life journey of Anjo Snijders and Sascha Groen, this episode unravels how t…
- Episode 100: A Chat with 100-Year-Old Mildred Kirschenbaum
Send us Fan Mail To celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum. Mildred has become a social media star and is happily sharing some life lessons of her ten decades. She not only became an autho…
- Broadway's Aaron Lazar on Making the Impossible, Possible ... Even with ALS
Send us Fan Mail In this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS. Aaron has been in the spotlight for over two decades in his successful career as a singer, a…
- Zac Brown Band's John Driskell Hopkins: An Update on ALS, Life and Music
Send us Fan Mail Grateful to catch up with John Driskell Hopkins (Hop) again to see how he’s doing with his ALS diagnosis. About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band. Despite seeing some…
- Goode and Faithful Servant: A Chat with Kerry Goode
Send us Fan Mail So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015. Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Do…
- Could it be ALS? - Bob Scannell on ALS Misdiagnosis
Send us Fan Mail In this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise awareness about the disease. After enduring a series of misdiagnoses bef…
- “Staying Loudly” - Sam’s Positive Mindset with ALS
Send us Fan Mail In this compelling podcast episode, I delve into an inspiring conversation with Sam Telgkamp, a resilient 27-year-old battling ALS. Despite her inability to speak due to the progressive nature of the disease, we explore he…
- 37-year-old Sara Bennett: Life, Death & Parenting with ALS
Send us Fan Mail In this episode of ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio. At just 36 years old, Sara was confronted with a devastating diagnosis: ALS. In a candid and deeply moving conve…
- LOVE & SUPPORT from ALS Family of Faith
Send us Fan Mail In the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hageman. Listen in as they illuminate the profound impact of their nonprofit organization, de…
- 20 Years Living with ALS: A Special Q&A with My Sons Co-Hosting
Send us Fan Mail When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener question…
- Rebuilding Together After ALS Loss: Juliet Taylor & Tim Abeska
Send us Fan Mail In this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow & widowers. Realizing they lived in the same area and had common interests, they met for cof…
- Community Building Amidst ALS: Karen (thekaregiver) & Tony Vick
Send us Fan Mail Here you’ll meet Tony and Karen Vick. Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years. Karen, his dedicated wife, serves as his full-time caregiver, showcasing the strength of their bond. Despite…
- How to Find Gratitude During Hard Times
Send us Fan Mail In this episode, I talk about having gratitude even during hard times. I recorded this on Thanksgiving Day. Thanksgiving encourages us to pause and express gratitude for the positive aspects of our lives. For me, It always…
- Amanda Stevens: Wife, Mom, Caregiver & Founder of AxeALS
Send us Fan Mail Here I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on The Ellen DeGeneres Show in 2019. Amanda and Eric were married only one month when Eric was…
- Teen Actor Lance Alexander: "From Junk to Hunk"
Send us Fan Mail In this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio. You might know Lance from his role as Elvis, a recurring role on the award-winning Netflix show “Family Reunion.” Like many, durin…
- Radio Legend Jim Scott: Living Positively with ALS
Send us Fan Mail Here my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati. He has been heard all over the country during his 55+ years on the air, mostly on 700 WLW Radio. He simply is one of the most giving &…
- Military Veteran Kate Peters Battling the Enemy: ALS
Send us Fan Mail Here I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters. She served in the USMC 2007-2015, USN 2015-2020 and served in Operation Iraqi Freedom. Kate is a mother of two boys, three and…
- "Hope Fights Back" - Andrea Peet & Meredith Atwood
Send us Fan Mail Here I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “go on, be brave.” I'm absolutely thrilled to catch up with Andrea Lytle Peet again and meet…
- "Ask Me Anything" - Host Q & A on Life, Outlook & My Terminal Illness
Send us Fan Mail This episode is just me answering YOUR questions. I had a lot of requests for this format again, so I asked listeners to send in questions about anything and I answered them here. I'm so grateful for all the questions that…
- Tackling Tough Conversations About ALS (Part 2/2)
Send us Fan Mail Here I continue my talk with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives. When you’re living with a terminal illness that doesn’t have a cure and typically gives you jus…
- Tackling Tough Conversations About ALS (Part 1/2)
Send us Fan Mail When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this episode, I bring together 3 others who…
- Power of Positivity with Child Abuse Survivor, Courtney Cirabisi
Send us Fan Mail In this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California. She became reliant on a wheelchair for everyday mobility after she was child abused by her dad when she was 9…
- Q&A: Young Adults Living with ALS (Part 2/2)
Send us Fan Mail May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS. We answer the questions sent in by listeners of this podcast a…
- Q&A: Young Adults Living with ALS (Part1/2)
Send us Fan Mail In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness. May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no…
- "The Wisdom of Morrie" with His Son Rob Schwartz
Send us Fan Mail On this episode of I'm Dying To Tell You Podcast, I talk to Rob Schwartz son of Morrie Schwartz from the classic book Tuesdays with Morrie. We chat about the newly released book, “The Wisdom of Morrie.” The book was writte…
- Zac Brown Band's John Driskell Hopkins & His Battle with ALS
Send us Fan Mail Here I sit down with Zac Brown Band founding member, John Driskell Hopkins who is using his stage to help bring awareness to ALS, also known as Lou Gehrig’s Disease. John was diagnosed with ALS, a terminal illness with no…
- Fighting ALS with Humor: Brooke Eby
Send us Fan Mail Here I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease. Brooke was diagnosed with the terminal illness, ALS, at a young 33. With the…
- John Carthum: Outliving ALS By 27 Years
Send us Fan Mail Here I talk to someone who has ALS for over 25 years. I reconnect with a former colleague from Kraft Nabisco, John Carthum. It was a few decades ago when I heard John left the company for medical reasons. I never knew what…
- "Sometimes I Shake" - An Inspirational Tale on Living Fully
Send us Fan Mail Here I chat with award-winning director/producer, Jared Callahan. He shares the inspiration behind the film, SOMETIMES I SHAKE. The documentary film follows PLNU music professor and jazz conductor Dan Nelson as he navigate…
- 4 Easy Ways To Spread More Love
Send us Fan Mail In this episode, it's just ME talking about LOVE :) Here I mix it up a little and talk about what's on my heart. This releases on Valentines Day, so talking about LOVE ... specifically 4 Easy Ways To Spread More Love. I ta…
- Brian Wallach & Sandra Abrevaya: Action Born from Hope
Send us Fan Mail Here I chat with Brian Wallach and his wife Sandra Abrevaya, co-founders of I AM ALS and Synapticure. At 37, Brian was diagnosed with ALS—on the same day he and he and Sandra brought their second daughter home from the hos…