From Caregiver to Research Participant: How One Woman’s Experience as a Dementia Caregiver Drew Her to Alzheimer’s Research
Caring for a loved one with cognitive decline can be challenging. While it is a labor of love, burnout is all but inevitable. In this episode kicking off our Voices of Research Participants series with co-host Sarah Walter, Cynthia Sierra touches on her personal experience with caregiver burnout as both a caregiver and research study partner for her mother, who has early-onset Alzheimer’s disease. She also shares her unique perspective on Alzheimer’s disease research as someone who started as a family caregiver. Guest: Cynthia Sierra, MS, LPC, senior project manager, UT Health San Antonio Co-host: Sarah Walter, MSc, program administrator, Alzheimer’s Clinical Trials Consortium (ACTC) and Alzheimer’s Therapeutic Research Institute (ATRI) Show Notes Learn more about Cynthia Sierra’s research at her ResearchGate profile . Learn more about Sarah Walter at her bio on the Alzheimer’s Clinical Trials Consortium website . Find resources for people with dementia and their care partners on our website . Connect with Us Find transcripts and more at our website . Email Dementia Matters : dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter . Subscribe to the Wisconsin Alzheimer’s Disease Research Center’s e-newsletter . Enjoy Dementia Matters ? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer’s . All donations go toward outreach and production.